Amyloidosis Research Consortium Hiring Director of Communications & Marketing | Remote | Up to $135K

Lead Strategic Communications for a Growing Health Nonprofit

The Amyloidosis Research Consortium (ARC) is offering an exciting opportunity for an experienced communications professional to join its team as Director of Communications and Marketing. This fully remote leadership position is designed for a strategic communicator who can strengthen nonprofit visibility, build meaningful engagement, and support efforts to improve the lives of people affected by amyloidosis.

ARC is a nonprofit organization dedicated to accelerating research, improving patient outcomes, and creating stronger collaborations between researchers, healthcare professionals, industry partners, and the amyloidosis community. Through innovation and collaboration, ARC works to transform the way research is conducted and ensure patients have access to accurate information and quality care.

The successful candidate will play a key role in shaping ARC’s communication strategy and expanding its reach among patients, caregivers, donors, researchers, and partners.

About the Director of Communications and Marketing Role

The Director of Communications and Marketing will lead ARC’s communication function while working closely with the Chief Executive Officer and organizational leadership. This is a hands-on role that combines strategic planning with practical execution.

The position requires someone who can develop communication strategies, manage campaigns, create compelling content, and coordinate resources to achieve organizational goals.

The Director will oversee communications planning, digital platforms, brand development, website improvements, social media, email communications, fundraising campaigns, and event communications.

This role provides an opportunity to build and strengthen ARC’s communications systems while helping a growing nonprofit increase its impact.

Key Responsibilities and Areas of Focus

The Director of Communications and Marketing will be responsible for developing and implementing an annual communications and marketing plan aligned with ARC’s mission and strategic priorities.

Key responsibilities include:

• Creating and managing integrated communication strategies across multiple platforms.
• Developing storytelling approaches that highlight patient, caregiver, and healthcare experiences.
• Supporting fundraising efforts through donor communications and awareness campaigns.
• Managing website content, performance improvements, and digital experiences.
• Leading social media strategies to increase engagement and community awareness.
• Producing newsletters, reports, blogs, and educational resources.
• Supporting major events, campaigns, and organizational initiatives.
• Tracking communication performance through data, analytics, and measurable outcomes.

The successful candidate will also work with external contractors and vendors, including supporting major digital projects such as website redesign initiatives.

Ideal Candidate Profile

ARC is looking for an experienced communications leader with a strong background in nonprofit communications, marketing, or external relations.

Applicants should have:

• At least seven years of progressive experience in communications, marketing, or related fields.
• Experience developing fundraising and donor communications.
• Strong writing and editing abilities.
• Experience managing multi-channel campaigns involving email, websites, social media, and print.
• Ability to translate complex scientific or medical information into accessible content.
• Strong project management and organizational skills.
• Experience using communication analytics and performance measurements.

Candidates with experience in healthcare, rare disease organizations, patient advocacy, or scientific nonprofits will be highly valued.

Knowledge of CRM systems, email platforms, social media tools, and digital design platforms will also be beneficial.

Remote Work Opportunity With Competitive Benefits

This position offers the flexibility of working remotely while contributing to a mission-driven healthcare organization.

The role is a full-time position with standard working hours aligned with Eastern Time in the United States.

ARC provides a comprehensive benefits package, including:

• Four weeks of paid vacation.
• Paid sick leave and holidays.
• Medical, dental, and vision insurance support.
• Employer-paid life and disability insurance.
• Retirement plan with employer contribution.
• Employee assistance programs and wellbeing support.

The position offers a competitive salary range of USD $120,000 – $135,000 per year.

Why Join Amyloidosis Research Consortium?

Joining ARC provides an opportunity to make a meaningful difference in healthcare communications. The Director of Communications and Marketing will help ensure that patients, families, researchers, and supporters have access to trusted information and resources.

Through strategic storytelling, digital engagement, and advocacy communications, this role will help increase awareness of amyloidosis and support ARC’s mission to accelerate research and improve patient lives.

For communications professionals passionate about healthcare, nonprofit impact, and patient advocacy, this remote leadership opportunity offers a chance to use creativity and strategy to create lasting change.

How to Apply

Interested candidates are encouraged to submit a resume and cover letter through the Amyloidosis Research Consortium careers page. Applications are reviewed on a rolling basis.

This is an opportunity for a communications leader to join a growing nonprofit organization and contribute to a global effort advancing research, awareness, and support for the amyloidosis community.

LEARN MORE & APPLY HERE

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Disclaimer: Remote Job Opportunities (RJO) is not the  organization offering this opportunity. For any inquiries, please contact the responsible organization directly. Please do not send your applications to RJO, as we are unable to process them. Due to the high volume of  emails we receive daily, we may not be able to respond to all inquiries. Thank you for your understanding.